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Florence Mannes
Direktor/Vorstandsmitglied bei The Barth Syndrome Foundation, Inc.
Aktive Positionen von Florence Mannes
Unternehmen | Position | Beginn | Ende |
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The Barth Syndrome Foundation, Inc.
![]() The Barth Syndrome Foundation, Inc. Miscellaneous Commercial ServicesCommercial Services The Barth Syndrome Foundation, Inc. is a non-profit organization that focuses on Barth Syndrome, an ultra-rare genetic condition that primarily affects males. The private company is based in Larchmont, NY and was founded in 2000 by Katherine R. McCurdy. The condition is characterized by cardiac abnormalities, exercise intolerance, muscle weakness, severe fatigue, recurrent infections, and delayed growth. The foundation aims to raise awareness about the condition and fund research to find a cure. There are currently no FDA- or EMA-approved therapies for patients with Barth Syndrome. | Direktor/Vorstandsmitglied | - | - |
Karriereverlauf von Florence Mannes
Statistik
International
Vereinigte Staaten | 2 |
Operativ
Director/Board Member | 1 |
Sektoral
Commercial Services | 2 |
Besetzte Positionen
Aktive
Inaktive
Börsennotierte Unternehmen
Private Unternehmen
Unternehmensverbindungen
Private Unternehmen | 1 |
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The Barth Syndrome Foundation, Inc.
![]() The Barth Syndrome Foundation, Inc. Miscellaneous Commercial ServicesCommercial Services The Barth Syndrome Foundation, Inc. is a non-profit organization that focuses on Barth Syndrome, an ultra-rare genetic condition that primarily affects males. The private company is based in Larchmont, NY and was founded in 2000 by Katherine R. McCurdy. The condition is characterized by cardiac abnormalities, exercise intolerance, muscle weakness, severe fatigue, recurrent infections, and delayed growth. The foundation aims to raise awareness about the condition and fund research to find a cure. There are currently no FDA- or EMA-approved therapies for patients with Barth Syndrome. | Commercial Services |
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