Laurence Tiennot-Herment

The Association Française contre les Myopathies is a foundation dedicated to the research, treatment, awareness of neuromuscular diseases, aiming to help improve the patients' expectancy and quality of life. They offer services such as diagnostic tests, home therapy support, and enablement programs for education and daily living. The firm was founded in 1958, and is based in Evry.

Genethon is a biotherapy research and development firm, which engages in the design, development, and production of gene therapy treatments for rare diseases. It specializes in neuromuscular diseases, immune system or blood disorders, eye disorders, and liver and nervous system diseases. The company was founded in 1990 and is headquartered in Evry, France.