John Ragnoni

The Pediatric Brain Tumor Foundation of the United States, Inc. is a federally-registered nonprofit organization dedicated to ending childhood brain cancer through a comprehensive mission of care, cure, and thrive. The private company is based in Asheville, NC. The foundation accelerates research breakthroughs, supports affected families, and advocates for policies that improve patient outcomes and survivorship. It funds pediatric brain tumor research, supports scientific initiatives such as early career development grants, precision medicine research, and targeted therapy development, and fosters collaboration through networks and conferences. Family support includes educational tools, emotional support programs, peer mentoring, financial assistance, and guidance on clinical trials and long-term care. The foundation also provides resources for siblings and age-appropriate communication tools. Advocacy efforts focus on raising awareness, influencing legislation, and increasing research funding, with initiatives like promoting the Brain Act and integrating pediatric needs into state cancer plans. Community involvement is encouraged through fundraising events and various donation options. The company was founded in 1991 by Andrew Seth Janower. Courtney Davies has been the CEO of the company since 2019.